THE DROPZONE, by Shawn Palmer A GREAT MUSICIAN, by Lara Kosub, Abbotsford, BC I have a keyboard, guitar, and a flute. I play music in my spare time. I love to do music. I play keyboard, guitar, and flute. I enjoy playing them. I do it because it gives me the inspirational feeling that when I play the songs they just flow through me. The songs just come from the heart. There are other things that I love to do but I won't name them all. I really like my music because I think it gives inspiration to other people. I think that the music that I play helps the people to sing along, hum, clap, and listen. "Getting My Driver's License"/Getting My Independence", by Jonathan Kozak, Abbotsford, BC EDENVALE RETREAT, by Joanne Bunnin, Chilliwack, BC |
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“Life is like a box of chocolates…” Life is like a box of chocolates. If you live a good life, you will find peace and joy. If you look after yourself you might have a longer life and a happy one too, because stress is harmful. If you have feelings and they are sincere, they might help you to live longer because you are not living a lie, so life is simpler. If you live a bad life, you might be alone most of your life. But if you can stop and look at your life, you might live a happy and fulfilling life. Life is what you make of it. Good or bad, you make it the way you like. It could be like a bed of roses or like a bed of needles. When all is said and done, you can keep the life you choose. No one can tell you how to live your life, but YOU. I think that to live a good life, you must be good inside first. By Eric L. Anderson of Surrey, B.C., who is a self advocate and is married with 3 children |
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|
Hi
folks.
My
name
is
Henry
and
I am
a
drywaller.
That
means
I do
a
lot
of
heavy
work
to
fix
walls,
holes
in
walls,
and
everything
else.
I’ve
got
a
nice
girlfriend.
It
rains
a
lot
in
Prince
Rupert
but
we
are
also
known
as
the
City
of
Rainbows.
|
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| Hello. My name is Shannon Twan. I am one of the members of the Prince Rupert Self Advocacy Group. I go bowling every Wednesday. I work at Tim Horton’s once a week. I do bake sales to raise money. I will be going to Prince George for bowling in July 2001. I have a cat named Furball who is 5 years old. I live on my own. I also have a paper route 5 days a week. I help out a lot to set up this big conference every year. |
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My make is Robbie. I live in Prince Rupert, BC. I am a huge Vancouver Canucks fan. I travel to Vancouver to see the NHL Hockey games. I have a best friend named Darren Robinson. We are in swimming. I have a job as a commercial fisherman. I am in Special Olympics. We won the gold medal in Curling. Hi. My name is Jason. I belong to the Prince Rupert Self Advocacy Group. I enjoy family gatherings like Christmas. I enjoy going for walks and going to McDonald’s to be with my friends after the Self Advocacy Group meetings. I also enjoy going for car rides with my dad. Hi my name is Alex Tommy. I live in Smithers, BC. I like hockey and wrestling. I like going on trips in big buses. I took a bus to Prince Rupert for the Northern Self Advocacy Conference. I really like to hang out with my friends. I am also a big fan of WWF Wrestling. Good bye. Hi. My name is Leigh-Anne Brown. I am a student at Northwest Community College. I am also a member of the Prince Rupert Self Advocacy Group. I enjoy going to Special Olympics and taking part in raising money from our Bake Sales. I also enjoy living in Rupert because everyone is friendly. Dear friends, my name is Shannon. I was born in Prince Rupert. It is nice up here because I have good friends. I enjoy doing things with them. Love Shannon. |
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“Living
On
My
Own”,
by
Sheila
Chouinard My name is Sheila Chouinard. I am 46 years old. I have lived on my own apartment in Chilliwack with a roommate and friend for 11years. I have 4 brothers and sisters. I work part-time as a Volunteer at the Salvation Army Thrift Store packaging the baked goods. |
"P.A.T.H." ,
by Darlene
Johnson,
Abbotsford,
BC
A little
while ago, I
got together
with some
friends,
co-workers
and
supporters
and we did
my P.A.T.H.
That means
"Planning
Alternative
Tomorrows
with Hope".
It is a fun
way for me
to plan for
my future -
the way I
see it
happening.
Everyone
came over to
my house and
we sat
around
talking
about my
life. I got
to tell
everyone
what my
hopes and
dreams are
and they
shared what
they could
see my doing
in the
future.
After we had
dreamed
really big,
we broke the
ideas down
into things
that I can
do over the
next year.
One of the
things that
I am doing
is write
more letters
to my
friends and
family that
are far
away. I am
also going
to learn new
hobbies like
skating and
crafts and
find time
for old
favourites
like
cooking. I
also want to
do more
traveling.
A while back
I started
saving for a
trip to
California
and this
summer I
finally got
to go - I
had such a
great time
that I can't
wait to
travel
again. I
hope to
visit some
friends in
Alberta next
summer.
After we had
planned what
I wanted to
do, then we
started to
figure out
what I would
need to do
to make
these dreams
really
happen! We
drew it all
up on a huge
chart that
is on my
ceiling
where I can
look at it
whenever I
want and
remember all
the exciting
plans I
have.
Self Advocacy Net Stories |
|
| Bobby Charette | 8/8/2003 11:56:00 AM |
| My name is
Bobby. I live with Claude, Lynn, Natalie, Mario. I go to work with Wayne
at Arc. I love my coffee and pop. I love monkeys. I like to go for car
ride and go see some construction site to look at the big machine. |
|
| Chantal Carriere | 8/8/2003 11:46:00 AM |
| My name is
Chantal. I have my own apartment in the community and I love it. I love
to paint (paint by numbers,rocks) I like to go out with the Drop-In
center and have fun. I really enjoy when people come and visit me in my
apartment, I like visitors. I also enjoy going out with my Girls Group
we like to go to the restaurant. My family is very supportive. I have a
lot of friends. I like to tease the people I know. I really enjoy the
summer because I go out more, I hate the winter it's to cold to get out.
The favrite thing I like MEN!!! |
|
| dieter b mielken | 7/4/2003 3:08:00 PM |
| i Iam looking
for this person named dAISY MAY STEVEANS I KNOW IHAVE LIVED HERE ONEE I
LIKE TO GET BACK IN TOCH PLEASE HAVE HERE WRIGHT TO ME.here is my address it is 896 chapman road cobble hill and my phone number is 1 250 743 0043 |
|
| dieter b mielken | 7/4/2003 2:58:00 PM |
| renea watson (job seeker) | 7/2/2003 4:09:00 AM |
|
i am good with horses as i have 2 of my own i am willing to work my hart out as ...... i go to a privet school and have good grades. i live in the camden (sydney) area and need a weekend or afternoon job i just need a chance u can contact me on 0403566300 after school hrs or email me at helga_fish_69@hotmail.com |
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| renea watson | 7/2/2003 4:06:00 AM |
|
i am good with horses as i have 2 of my own i am willing to work my hart out as ...... i go to a privet school and have good grades. i live in the camden (sydney) area and need a weekend or afternoon job i just need a chance u can contact me on 0403566300 after school hrs or email me at helga_fish_69@hotmail.com |
|
| Angie Banks | 6/26/2003 11:25:00 AM |
| My name is
Angie. I'm 23 years old. I enjoy having BBQ's with my friends. I live in
Sturgeon Falls with a Family Home provider and my friend Simone. |
|
| Debbie Charette | 6/26/2003 11:23:00 AM |
| My name is
Debbie Charette. I am 47 years old. I like ti invite my friends over for
a BBQ. I also like to go to the restaurant with my friends. |
|
| LeeAnn Morrison | 6/25/2003 10:08:00 AM |
| My name is
LeeAnn. I live in Northern Ontario. I live with Louise, Jacques,
Melanie, Natalie, Stephanie and Suzanne. They are my family. I have a
cat named Gizmo, and two dogs. One named Rocky the baby and one named
Sunshine. I like to go to the restaurant for coffee and I like to walk with the dog. I go to a tea party once a week with Chantale and Debbie. I like to go for sleep overs with Dianne, Louise Angie, Simone, Maria and Margaret. They are my friends. My next sleep over will be at a Bed and Breakfast. |
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| Raymond Chretien | 6/24/2003 11:21:00 AM |
| My name is
Raymond. I live in Sturgeon Falls, Ontario. I am a very busy 57 year old
man. Last summer I went for a week long vacation in Nova Scotia. I had a
very good time and I experienced many new things. I've also been to
Florida. I have a part time job at Giant Tiger in Sturgeon Falls. I clean outside of the store and do odd jobs in the store. I love my job at the store. I have been working there for 11 years. I chose to leave the segregated workshop that I used to work in. I go to school 2 days a week from September to June. I have my own apartment in the community and I have a support worker to help me for 3 hours a week. I spend a lot of time in the community on my own and sometimes with other people from the Drop In Centre. |
|
| Jill. | 6/19/2003 12:12:00 PM |
| just adding
to the story of the boy that stumbled and fell over,during the special
olympic in seattle..you know the special olympic oath..."let me win,but
if i cannot win,let me be brave in the attempt"...that's what i wanted
to add. *smile* |
|
| Self Advocate | 6/18/2003 6:35:00 PM |
| A few years
ago, at the Seattle Special Olympics, nine contestants, all physically
or mentally disabled, assembled at the starting line for the 100-yard dash. At the gun, they all started out,not exactly in a dash, but with a relish to run the race to the finish and win. All, that is, except one little boy who stumbled on the asphalt, tumbled over a couple of times, and began to cry. The other eight heard the boy cry. They slowed down and looked back. Then they all turned around and went back every one of them. One girl with Down's Syndrome bent down and kissed him and said, "This will make it better." Then all nine linked arms and walked together to the finish line. Everyone in the stadium stood, the cheering went on for several minutes. People who were there are still telling the story,,,. Why? Because deep down we know this one thing: What matters in this life is more than winning for ourselves. What matters in this life is helping others win, even if it means slowing down and changing our course. Passing this on, may change our hearts as well as someone else's. "A candle loses nothing by lighting another candle". |
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| Joe Pezzutto | 6/18/2003 10:50:00 AM |
|
I also like going on the 4 wheeler and going for rides in my friend Dianne's truck. I spend time with my friend Dianne and her family every Christmas. I'm part of the family and the girl's call me uncle Joe. I get lots of presents when I go there. I also like fishing. Sometimes my friends Jacques or Guy bring me fishing. I'm going to Guy's camp in July for a visit. |
|
| Dale Brown | 5/22/2003 1:56:00 PM |
| I am a
firefighter from Terrace, BC. I work hard there for a long while. I go
Bowling once a week. I won a trophy for Bowling. I came in First Place.
I live on my own and do my own shopping. |
|
| Dennis DesRoches | 5/15/2003 11:42:00 AM |
| I want people
to be happy. Henri and me live in the same house. We live together with
a family named Guy and Marie. I live in Sturgeon Falls, Ontario. |
|
| Dennis Desro | 5/15/2003 11:38:00 AM |
| Sarah | 5/12/2003 7:40:00 PM |
|
Then I saw some of the school jocks whispering a few steps behind him when one of them did something so cruel. He ran up behind him and pushed him to the floor. I stood there in shock as the jocks ran away laughing. I couldn't just stand there watching him slowly picking up his books. So I ran across the street to help him. Now it seemed as if there next was a big love scence. Dont worry, it's not. So after I helped him we walked on talking. Of course I carried some of his books. So soon we became the best of friends. I joked arond some days saying "Dork" and things like that. He never to offence. He was very sweet and nice. I wish that others gt to know him the way I know him. So a few years pasted and it was time for our graduation from 12th grade. I was so excited. My friend, he was in the head of the class and presented a speech at the end of the diplomas. He wouldn't let me hear the speech, he said it was going ot be a suprise. He had turned from a geek looking kid, with glasses and all of that to a pretty handsom young man. When the time for his speech came, the jocks that had pushed him down those few years ago where chating. They started laughing when my friend marched full of pride up to the stand. I bopped them on the head to shut them up. When he finished his speech, I wanted to cry. His speech went a little like this... "Hello Ladies and gentlemen. Thank you for coming to our graduation for the class of 2002. I'd like to say a few words before we finish the ceremony. Many people have created tight friendships with many friends during the past years of high school. Friends I say is one of the most important things to help you get through school. I know this by a personal experience. After a few months had passes by back in 10th grade, I was walking home. I was carring all of my things from my locker. Some other kids had pushed me down when my good friend *he looked right at me* helped me up. You see, that afternoon, I had every intention of killing my self. My life was miserable. I had no friends. Sure my grades where A+s but that had no effect on me. I didn't care one bit about my grades. What I most wanted was a true friend. And that day, God sent a friend to protect me from killing myself. I've thanked God every day. I am so happy I didn't kill my slef that day. There is so many things I never would be able to do, all of the things I have done since then. For example, the honor of speeching this speech tonight. So, when I am finished, please dont clap for me, if you do clap, clap for my friend. Sarah. Please stand." I stood up and smiled at him. The audience was clapping and crying at the same time. He walked down the stage towards me and we hugged. The audience clapped even louder. We sat down by each other and the rest of the night, couples of people turned around and smiled brightly to us. I was so happy of that day. -Authors note This story was not 100% true. The part with the kid that was going to kill him self was true. My teacher told the story to our class and I wanted to make the story more dramatic and happy. It wan't me! Just to let you know. |
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| AU speaker tells inspirational story of overcoming disability | 4/7/2003 1:56:00 AM |
| AU speaker
tells inspirational story of overcoming disability Publication date: Saturday, March 29, 2003 BY JIM BAILEY Staff Reporter In many ways, Johnnie Tuitel has had tremendous advantages in life. He cracked joke after joke at Anderson University's Thursday morning chapel convocation. He is a successful businessman. This spring he will be named Hope College's Distinguished Alumnus of the Year. Then you realize he is operating from a wheelchair. With lighted wheels, yet. Tuitel, guest speaker as AU observes Disability Awareness Month on campus, was born 3 1/2 months prematurely 39 years ago when his mother suffered a ruptured appendix. After defying the odds by merely surviving, he was subsequently diagnosed with cerebral palsy, and his Dutch immigrant parents were told he would never be "normal." "Put him in a home, go home and have normal children," they were advised. "But my dad told me, 'We didn't understand English that well, and when they told us you had cerebral palsy, we thought you were gifted,'" Tuitel joked. His parents pushed him to be all he could be, he recalled. "The world owes you nothing just because you're in a wheelchair," they told him, "but you owe the world everything." He played Little League baseball. "I could get on my knees behind the plate and catch," he explained. "Today it's called adaptive physical education; back then it was just a kid who wanted to play baseball." In 1974 he became the first student with a disability to be mainstreamed in the public school system in Michigan. He went on to receive a bachelor's degree from Hope College in Holland, Mich. He has co-written books and operates a nonprofit organization that provides wheelchairs for people who cannot afford them. He has received several prestigious awards. "They give you awards for just waking up in the morning," he cracked. "God gave me the ability, through my mother, to laugh," he said. "I can do a lot -- more than is good for me, probably -- but I'm never going to walk. But I'd rather spend my life in this chair with the security that my name is in the book; I know the gifts that are coming my way" in the hereafter, he emphasized. Tuitel admitted that parental influence was a big plus for him -- "most of the time," he said with a grin. "It breaks your heart when you see a kid in middle school who has bombed out. You find out the father is gone all the time, or the mother is out dating every night or passed out on the couch. Kids need boundaries. I tell them life is a struggle, but you've got gifts. But a lot of kids don't have that resource." From a physical standpoint, Tuitel believes disabled people have advantages today they didn't used to have, in part because of the Americans with Disabilities Act that has mandated such things as curb cuts and ramps to assist people in wheelchairs in getting around. "But we still have a long way to go, not so much from a physical standpoint as a personal one." Mainstreaming has been helpful in bringing people with disabilities into situations where they can achieve alongside others. But he admits it's a mixed bag. "They need inclusion, but some need one-on-one attention; sometimes they fall through the cracks," he said. As someone disabled from birth, he feels no particular advantage over someone suddenly thrust into that world through accident or illness. "Either way, you can't walk," he explained. Tuitel cites his faith in God as the most important thing in his life, along with his children. "I've done a lot, but none of it on my own," he observed. His advice for students, again subtly tongue-in-cheek: "Ten years after you graduate, your grade point average means very little. My first year at Hope, my GPA was 0.6. This year I'm going to be Hope College's distinguished alumnus." |
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| http://web.archive.org/web/20030815194457/http://www.theheraldbulletin.com/cgi-bin/LiveIQue.acgi$rec=41499?hb_story | |
| 3/9/2003 8:55:00 PM | |
| Living with Spina Bifda | 3/7/2003 2:42:00 PM |
| Dear Friend,
My name is Amy Hensel and I am from Oswego, NY. The reason I am writing you is because I wish to share a bit about my hasband with you. First of all, I am including a story my husband wrote about living with a disability called, "Living with Spina Bifda". After you read this story I am sure you will be amazed with Roberts heart. Also the most important thing I would like to tell you about is, on Thursday Oct 3rd at 2;:12 pm My husband Robert set a Guinness Book of world record with The Longest long distance wheelie in a wheel-chair to raise money for wheel-chair ramps in our community. Below I am giving you the address to a online newspaper that did a story on my husband during the event. Please take the time to look at the site and I know you won't be disappointed. The website address where you will find the story on my husbands world record is at: www.oswegodailynews.com "Please Note" The Story was done on Friday Oct 4th 2002 so you will need to look up that day. Also, the name of the article you will be looking for is " Local Man Makes World Record By Staying On Two Wheels." Living With Spina Bifida I grew up with a birth defect known as spina bifida, a disability that affects my sense of balance, causing me to walk with a limp. Not only does it affect the function of the legs, but it also has an impact on the kidneys, causing them to deteriorate. The disability has had its ups and downs. As a young child, I can remember the way other children would look at me and stare because of the way that I walked. There were many times that my schoolmates would laugh at me and call me names simply because of their lack of understanding of why I was a little different, especially back in the mid 70s and early 80s. Children then were just unwilling to take the time to learn why one of their classmates might walk, speak or seem noticeably different from themselves. Now that I am an adult, I have noticed that the stares and names have begun to fade, and judgments that once were negative have begun to turn toward acceptance. The signing of the ADA has played a great part in breaking down some of those barriers that, as a child, left me to fight a war that seemed to have no end. Now I look beyond what I can't do and focus on what I CAN. I have learned that limitations open doors that have been closed, showing other ways to meet our needs. I have always looked at life as a challenge, grasping each obstacle with open arms. There is nothing in this world that comes easy. I must stand tall and look forward, to be ever so ready for what still lies ahead. People often feel sorry for those who were born with some type of disability. But their compassion is misplaced. Yes, I may not be able to run as fast or perform certain tasks, but my disability gives me a better look at life and all that's around me. I want to be seen not as a disability but as a person who has, and will continue to, bloom. So I decided to become a advocate on behalf of disabled Americans, to fight for our rights that for so long have been ignored. I feel that it only takes one powerful voice to change the minds of many nations, and as long as I have a mouth to use and a mind to think I will continue to work to bring peace upon the disabled community. Author: Robert M. Hensel, born in Rota, Spain in 1969. Currently a resident of Oswego, NY, he is an international poet-writer. On October 1st of 2000, Robert was honored when the mayor of his home town declared a week for the disabled, "Beyond Limitations Week", in his name. "BEYOND LIMITATIONS" Placing one foot in front of the other, I've climbed to higher lengths. Reaching beyond my own limitations, to show my inner strength. No obstacle to hard for this warrior to overcome. I'm just a man on a mission, to prove my disability hasn't won. BY: American Poet: Robert M. Hensel |
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| HOW PEOPLE COMMUNICATE | 3/7/2003 1:27:00 PM |
| By: E. Sara
Seesahai, Nasheena Virani, and Watson Derek Moy Words are powerful so you have to be careful which words you use. Words can make people feel many different emotions. One small word can make a big difference. If you say something nice, people will want to be around you. You will make people feel happy and comfortable. But if you say something rude or swear, chances are people will feel offended and hurt. It might mean that you lose your job or get kicked out of places you love. People can use words to make things better, for example using kind words to comfort a friend. You can also use words to solve problems like talking through a misunderstanding. Using words to share your ideas with people is powerful. Your words can bring a positive change to your life and the people around you. If people can�t use their verbal skills to communicate, there are many other ways to get your point across. You can use sign language or body language, or you can use pictures or drawings to show how you feel. If people are communicating to you make sure that you answer them, and pay attention so don�t doze off! Listening and answering people�s words will show that you care. You can make a difference with your words, both good and bad. It is your own decision to make. |
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| Friendship in our Lives | 3/7/2003 1:23:00 PM |
|
Friendships are very important to our lives. Friends share our good times and help us through the bad times. It is important to have many friends in your life. When push comes to shove you can count on your friends. You have to make room in your life for the people you love, like your friends and family. Friends are people that you can trust; they can help you with things you are having trouble with. They can make you feel good by complimenting you, giving you a warm hug, and supporting you. With a friend you can share warm memories of happy times, full of laughter and fun. Love is the greatest thing you will ever have; it is built into your very skin. Everyone is able to love and be a friend. To be a good friend you need to offer your support and comfort, and be with them through both the good and bad times. Good friends are like precious jewels; it is so wonderful to have them around in your life. Having no friends is like being in a dark room full of strangers. You feel scared and lonely with nobody to trust, and that would be very frightening. Life would be pretty boring without friends. Nobody to share phone calls with or go out and do something fun. With no friends you couldn�t share your frustration and sadness. Carrying around those feelings inside you can make you feel helpless and angry tempered. If friendships are so important to your life, how do you make a friend? Go to places you like to go, for example bowling or a bookstore. Look around at the people there and introduce yourself. Have a chat and give them a chance to get to know you. If you both like something, make a plan to go and do it together. Call your new friend to talk and invite them to do more things with you. Make sure you treat your new friend well. That means answering when they talk to you and not tease them if they don�t like it, as this can hurt their feelings. You don�t want to risk losing your friends by treating them badly. After reading this, take a moment to call one of your friends. Please remember that friendships are very important in your life, don�t take them for granted. |
|
| Chelsea | 3/4/2003 3:35:00 PM |
| Basketball
My first basketball practice. I was really nervous, but i got out there and play with the rest of the players and guest what I wasn't so bad. We learned on to bounce, dribble, and pass the ball what an exprience. |
|
| Persons with Disabilites (pt 1), by Cathy Grant | 2/8/2003 3:34:00 PM |
| We had just
finished showing our video, the one narrating our �cultural story�, and
we explained the context of it. It was our story, that of all political
refugees, from any country, from any kind of political persecution.
Elana had told some of our personal circumstances, centering on the
difficulties of rediscovering normality, the problems of learning to
enjoy life again without feeling guilty. We noticed that again, as
always before, the story had made a deep impact and the participants
were wrestling to react, not knowing exactly what to do, but certainly
searching in their own lives, for circumstances approaching what they
had just seen and felt. Two of the participants told us that they had
lived in several places in Canada, having had to encounter the
difficulties of new beginnings in their own lives and recognizing
commonalties with what they had just heard. Then Cathy began to speak but did not want to be taped. She wanted to explain how the passage in the video that says �nobody wants to know your story, they only ask you formal question,� resonated with the story of her whole life. A member of the co-op�s Board, she made it to the home where the meeting was taking place in her electric wheelchair. From the very beginning we all felt clumsy, trying to accommodate her in the living room trying to find her a position where she could see and hear well. The wheels got stuck in the carpet several times. The chair appeared extremely heavy and bulky. To get her close to the window, so that she would not feel too hot, involved several moves - our efforts to push conflicting with the electronic commands Cathy gave the chair by pressing buttons. We did not know anything about her but we had seen the stream of sympathy that moved the other participants to make her feel welcome and at ease. Then, a veritable cascade of pain began to flow out of her initially carefully chosen words, pronounced in her voice, which wrestled to be understood with every word. �Nobody wants to hear your story, they just ask you formal questions�, she said, telling how people could not relate to her, how hard it was for everybody to just listen to her. She explained her feelings of powerlessness when people rushed to shut her down, whenever she attempted to disclose something about her life. How people rush to comfort her with shallow words, emphasizing, perhaps with the best intentions, how �fortunate she was having appropriate caretakers, living in a nice co-op, having a whole system of support for people like her.� �But nobody can understand that it is not my surroundings that trouble me the most. It does not matter what the circumstances of my environment may be, it is me that is the problem, this pain in my soul, in my heart. It is this body in which I find myself trapped, this wheelchair without which I cannot move. It is me that is the problem, it is me that I cannot stand any more, living every minute of my life wondering how is it that I made it through the previous minute. It is the horror that I feel realizing that I am a mirror in which people do not want to see themselves, I see them walking away, feeling sorry or guilty, but without knowing what to make of their encounters with me.� Please contact me to let me know what you think of my writing at the following e-mail address: cgrant@aebc.com |
|
| Persons with Disabilities (pt 2), by Cathy Grant | 2/8/2003 3:33:00 PM |
| � This week
has been particularly bad for me. So many problems at home, so much
abuse, so much anger. It�s like a black hole without end. And those
caretakers shutting me down all the time, blaming me or making me feel
bad or ungrateful. Whenever I point out a problem affecting me, for
example, that I need a new wheelchair, they will defend themselves
saying that it is not their responsibility. But I am not asking them to
solve my problems, I just need to talk about it, talk with them, with
anybody. Thank God that there is the telephone which allows me to talk
to people. How good it feels whenever the phone rings.� �I have been abused ever since I can remember. My alcoholic mother and my alcoholic father abused me until they abandoned me completely. I moved from institution to institution, within this large machinery of the system, with its doctors and nurses, and bureaucrats and social workers, caretakers and welfare workers. All paternalistic or indifferent, aggressive or careless. Worst of all, I do not even know what I do need, if anything. I just know of this pain that never leaves me. I cannot take it anymore; I never could take it and so often I wanted a medication just to sleep, sleep forever and never wake up again into this nightmare that is my life. Nobody seems to really care, nobody loves, nobody has a heart, nobody has time for feelings, and that is why this society is in the mess it is.� People talked long after Cathy left. She was expected to be home at 10 pm. How to deal with her situation, how to help her, how to accommodate her needs and support her? At the same time all the feelings of solitude affecting each of the participants began to emerge. The tyranny of daily life with its demands on each of them. The lack of intimacy and dialogue in the co-op even among the Board members, the decline of socializing in the co-op. Something profound had happened right there: people could not relate to each other anymore as they did before because a new intimacy had been shared in the group during this meeting. How important it would have been if all of the neighbors had heard Cathy open up, say things and talk in a way that none of them had heard before. This meeting was a microcosm of the whole Diversity Project, a living example of the difficulties a community faces to cope with difference. It was clear that despite the good will of community members, there is a feeling of relative powerlessness and confusion. The group talked about how difficult it is to find energy and time in everybody�s life to go out and help others when so often they come back exhausted after work. There was unanimous agreement on the positive value of the experience they had just shared and on the extent to which workshops similar could benefit other members of the community. Cathy has contacted us to add this note to her story. �Since this story I have reflected much more on the worried upset state that I put myself through. I have decided not to dwell on what I can�t control that used to upset me. Today, I appreciate in a deeper way what people do for me and am truly thankful for their help. I appreciate the mountains, the trees and animals more. It still feels like I wasted a lot of time in systems but I don�t get as frustrated as I used to.� You can contact me to let me know what you think of my articles on thsi website at the following e-mail address: cgrant@aebc.com |
|
| YOU CAN GET THERE FROM HERE! (By Cathy Grant) | 2/8/2003 3:31:00 PM |
| There are
very few maps to help us make our journeys of the heart. It is not a
journey we make alone, for we need good friends to tell us when we have
taken a wrong turn, and put us on the right road again. We have to
remember that �no pain, no gain� applies to mental as well as physical
progress. Sometimes on our journey through life we came across problems that are like brick walls, and we need the courage and motivation to map out a way to surmount them. If you can�t go through the wall, try going round it. If one door won�t open, try another door. Some people are in a very tough situation and are hurting so bad they have a hard time getting motivated to change. They need support to move in the journey of life. This process may take years. It�s one step at a time. When you run into a block, try to be happy where you are, then congratulate yourself for having got that far, then use the block as a stepping off point for the next part of the journey. Never give up! Hold the dream, and keep dreaming. Your dreams will tell you where you want to go. As we go through life, we sometimes become like the hermit crab. We change and grow and have to move from one shell to another. The time when we are without a shell is when we are the most vulnerable but, the journey must be taken. For the body and mind. Also, the crab usually has a choice of returning to the old shell, though we may no longer fit into it properly, so it feels like a prison or an institution instead of a home. Living in an institution can cause real problems. Sometimes, incorrect information is given them; this information becomes a basis of knowledge or understanding of a situation. Then when you leave the institution, the gaps in your knowledge become apparent and a new start has to be made. Low self-esteem is a major difficulty for those who are institutionalized, and this may make it hard to begin the journey. When we are constantly being reminded of our limitations, it makes our limitations seem greater than they really are. We should set our own limitations, and not allow others to set personal limits for us. We have to believe in ourselves, and keep a balanced view. Of course, fear of the unknown brought about by new situations make it difficult to trust enough to bring about changes. Sometimes problems can hound and haunt you but, try taking one very small step outside or beyond them, staying in reach so you can step back if you have to. You will be surprised at the blessings I guarantee you will get if you take that step! Sometimes, in order to make the change, it is necessary to leave behind a past experience, and this will hurt both you and them. But, trying to mix two different situations is difficult, and time and �space� is needed to get your act together. The often one can reconnect again. Maps are good for traveling around the physical world but, our inner journeys which reflect our real feelings, are ones that need very careful mapping. Religion is one kind of a map but, not everyone reads the map the same way. Also, it is easy to get into the trap of believing the interpretations of others, rather than believing for themselves. The physical map changes because the boundaries of countries often change, and the map of our lives often undergo drastic boundary changes too. Remember that just as there are speed limits when you travel the highways, so there are speed limits to interior travels. Only we who take the journey of the heart can set the speed limit so that we, with God�s help, arrive safely at our destination. Cathy Grant November 15, 1988 cgrant@aebc.com |
|
| How to walk on thin Ice (Pt. 1) (by Cathy Grant) | 2/8/2003 3:28:00 PM |
| HOW TO WALK
ON THIN ICE WITHOUT FALLING THROUGH � I KNOW YOU BELIEVE YOU UNDERSTAND WHAT YOU THINK I SAID, BUT I�M NOT SURE YOU REALIZE WHAT YOU HEARD IS NOT WHAT I MEANT.� By Cathy Grant Take Care of Millie tells of newly widowed Millie and her daughter Jan and the communication problems that nearly wreck their relationship. �Communication� explores different kinds of relationships and the communication blocks that can occur. References to these sources will be made in this paper. Human relationships can be fragile things and we often approach them as if we are walking on thin ice. Real communication helps to stop us from falling through the ice too often. The most important thing to remember is that people should have their feelings recognized as valid, and empathy with those feelings should be used as the basis of communication. Communication, like charity, should begin at home. But we learn by observation, and we often observe people who have never learned to validate the feelings of others. In the film, a little boy goes to his parents� room one stormy night and says, �Mommy, I�m afraid of the storm.� His mother replies, �oh honey, no you�re not.� When feelings are denied, children, especially boys, feel they should not express them. Then, as adults, they still have the same problem and are unable to talk about their emotional needs. The old saying, �little children should be seen and not heard� can be a very dangerous precept. In the film, the point was made that some parents are too embarrassed to discuss the facts of life with their children. And yet sexuality is a normal part of life, and growing up, and not to discuss it increases the chance of teenage pregnancy. There is another episode in the film where parents tell a teenage girl that they do not want her to go out at night with her boyfriend in his car. The girl hears �You don�t trust me.� The parents mean they want to protect her from a situation she may not yet be able to deal with. Another problem that can arise is the different ways in which boys and girls are raised. Little boys are socialized to be �tough� and little girls are to be gentle and nurturing. So girls don�t learn to be assertive in making their needs known, and boys learn to be aggressive and not sensitive to the needs of others. Both of these behaviors can block communication. There are many communication blocks. Age and physical appearance should not be blocks but often are. People who are physically handicapped are often treated as though they are little kids, mentally retarded, sexless and deaf. I myself have had people pat me on the head as if I were a little child and speak to me in far too loud of a voice. |
|
| How to Walk on thing Ice (pt. 2) (by Cathy Grant) | 2/8/2003 3:26:00 PM |
| Sometimes
people do not communicate verbally, but do so by body language. This
often speaks much louder than words for words can be misinterpreted.
Body language can usually be understood very well, unless the other
person is from a different culture. Written communication can present problems. The reader cannot question the writer to make sure of the meaning, and there is no body-language or voice inflections to use a guide to true meaning. Communication between people can be interfered with by modern inventions. The presence of television in people�s living room means that people often react to the set, rather than to each other. Understanding can be blocked if people do not discuss their expectations of each other, feeling that if the other person really cares, he or she will �know� what they should be doing or saying. Millie and Jan don�t discuss their expectations of each other, and don�t air their true feelings. Nor should anyone expect that one person can meet new people, and to be useful. When meeting new people, communication can be established by finding a common ground, or building a bridge to the other person. Millie gives the bird woman, who does not speak English, some bread-crusts to feed the birds. Then her knitting is the point of contact between herself and the jogger. Touching such as holding hands and hugging is a very important way of communicating. In the book, Jan�s husband Fred holds Jan gently in his arms while he tell her she should listen to what her mother is trying to tell her. In this way, he shows her that while he doesn�t like the things she has been saying and doing, he still loves her very much. This kind of behavior greatly reduces the chance that communication will be blocked by defensiveness. Sexual activity, or the lack of it, is a big way of communicating. When it ceases, it is usually a signal that something is wrong with the relationship. Friendship and relationships are risk-taking experiences so we are all at risk. It is easier to keep things to ourselves, or to say them to others, rather than say them to the person concerned. We are scared that if we speak up, we will lose the relationship, the more important the relationship, the more scared we are of losing it. |
|
| How to Walk on thin Ice (pt 3) (by Cathy Grant) | 2/8/2003 3:26:00 PM |
| In
communication, honestly is hard, but it is the best policy. We may lose
the relationship but it is better to risk that than to live a lie. To live under the control of other people makes it hard to communicate. This can apply to students in a school, patients in a hospital or the lower ranks in the armed forces. This inability to communicate can lead to tension, which can lead to bladder control problems, rashes, and even gastric ulcers. So true communication is vital for both physical and mental health. True communication means that strategies must be implemented to achieve results. Sometimes this can be achieved by having a neutral third person act as facilitator to keep the flow of information going, and prevent the discussion from digressing into a brawl! If we venture out into the thin ice of true communication, much can be done to help us not to fall through. Communication needs the proper surroundings, and proper conditions, to succeed. When we are tired, we cannot pay full attention to what is being said. True communication needs people who are well rested, and should be held on neutral ground, if possible. That is, in a restaurant, or in a park, where it is more difficult for people to just walk out instead of confronting the problem. Always respect the dignity of the other person, any damage to their self esteem will close off communication. Do not allow the discussion to become a confrontation. Let the other person know that you love them, and do not want to hurt them, but they are doing something that is upsetting you, and you need to talk about it. Make sure you don�t use emotion-loaded words. Don�t say �you have a bad habit that drives me crazy.� Instead say something like, �I�m sure you don�t realize how I feel when you do that, but I just have to explain it to you.� Use eye contact at all times, don�t stand over the person, but be physical on the same level. Always check and make sure the other person knows just what you mean. After all, a word may mean one thing to you, but something different to someone else. Use the simplest words you can. If you use long words to someone who is in an emotional situation it is like a doctor using medical terminology to a patient. It is more likely to create confusion rather than clear up a situation. Do not expect to just deal with your problem and then close off the communication. Give the other person a chance to express his or her feelings. And if at first you don�t succeed, don�t give up, but try again. A good relationship is really worth the effort!! |
|
| Touch. It's a good thing! (Part One) | 2/8/2003 3:22:00 PM |
| by Cathy
Grant Without touch you can die. I may not have died physically in the past, by my emotions and my soul were on the critical list several times. I feel that many people still have a problem touching individuals who are disabled. The reasons for these problems are many. Part of it might be ignorance, but mostly I think it is fear, fear that they may hurt me in some way, fear that my disability is somehow contagious, fear that they may get into trouble with me or someone else if they "invade my personal space". These fears are often exasperated by my electric wheelchair. I wish people (this included, in the past staff people) could get over this, because it was contact with others that finally helped me to start healing. The reason why touch is so important is because it lets the disabled person know that they are real. This might sound a bit strange but let me explain with an example from my own life. I am a middle aged woman with cerebral palsy. I would be the first one to admit that I am sensitive about parts of my body, and that if I move or am moved too quickly in the wrong way, it hurts and I let people know it. However, this does not mean that I am made ouf of glass! A gentle squeeze on the shoulder, back or hand is not going to break bones. If you are unsure about wether or not some form of youch is welcome of not, just ask! I or whomever you are supporting will generally let you know. When I was very young, I was very upset one nigth and my dad picked me up and walked me through the house. As well as walking, he started to dance with me in the living room with me in his arms. I remember this as if this happened only yesterday. In the world today, there have been studies whereby children who get touched are happier and healthier as they get older. |
|
| Touch: It's a good thing (Part Two) | 2/8/2003 3:01:00 PM |
| When I and my
twin brother were born, we were both in incubators for aroudn 52 days.
The incubators at that time did not allow for much touch by medical
staff let alone parents. I personally feel that this had long term
negative effects on my physically and emotionally. Making it more
difficult to relate to people around me and increasing my feeling of
isonlation. I know how I survived my childhood and my teen years with very little touch from the people around me. I did this by faith and determination that my needs would eventually be met. My needs finally started getting met just over a year go. At this time I started getting honest and more open with my staff, my friends and most importantly myself. I try to stay honest even when things start to get rough. It has not been easy. I still have my bad days. Old tapes are played back, and I've ended up in screaming matches with my staff and friends. However, in the end, the air being cleared, and their hugs have let my hody know that everything is alright. In my past, I had lots of hug poster-poem sayings all through my house. But people never seemed to get the hint! A really good example of what I'm talking about happened about a year and a half ago. I was talking to a new staff who had had a lot of experience in the field. I was telling him about my life, an old story that I seemed to tell all of my staff, when he suddenly came over and gave me a big hug. Ar first I was floored that someone was actually perceptive enough to see what I really needed. THen, I felt as if he was truly there with me at that time in that place. I also felt emotionally safe for the first time in a long while. As soon as that happened all the anger and furstration that I have been holding onto for years came up and out. I cried and criend, and all that this new staff did was hold on to me in silence When the initial onrush had settled down he quietly listened to me. He couldn't help me with the problems that I had, but by just being present and letting me know by his physical actions that I was in that space helped me heal. A gentle hug means more than these words on paper, probably. I know for a fact, that the saying goes "a picture is worth a thousand words." As we are in very difficult times with the government, we need to hug people and support them in greater ways. |
|
| TAKE MY PRESENT ��PLEASE By Cathy Grant | 2/8/2003 2:54:00 PM |
| January 25th,
1988 I believe people find it hard to receive; therefore they are more interested in giving than getting. We have been trained as children, and continue to believe as adults, that giving is good, but receiving is selfish. In the Gospels, it is written that it better to give than to receive. But if people do not accept gifts, nobody can give! Since we receive God�s unconditional love, it is up to us to love unconditionally too, and this means being able to receive. If we truly love our neighbour as ourselves we must do what will make him happy. So we should follow the golden rule and �do unto others� by receiving gracefully and gratefully. It seems to be easier for people to receive at Christmas, but after the new year people tend to go back to their old ways. Yet our need to give love, time and caring goes on the whole year round. So I think the greatest gift anyone could get would be the ability to receive things, especially LOVE. Taking things from people who are not very well off makes the recipient feel guilty, I think. People say things like �oh you shouldn�t have!� and �keep your money to buy something for yourself.� People tend to think that handicapped people shouldn�t buy things for others. If you take your purse out to pay for lunch, for instance, people will say �put your money away, please� or �you can pay next time.� But, the next time never comes. When people won�t take from me, I feel frustrated. Just the same, if someone more handicapped than I am gave me something, I would probably say �oh, you shouldn�t have.� I would accept the gift, and I would be so touched I would probably cry. Much of the difficulty is caused by a lack of true communication. We need to talk about when it is our turn to give, and when it is our turn to receive. When I am out with friends we discuss this beforehand. I think we all should do this. There are times when someone really needs to give, and if they are not allowed to, it hurts. Handicapped people have something to give, and they should be allowed to give it!! |
|
| A Gentle Soul. By Cathy Grant | 2/8/2003 2:45:00 PM |
|
This gentleness was expressed to me in several different ways. First, a gentle attitude, by this I mean by really listening to me and showing sincerity towards me. They also followed through on my decisions, even if they felt that they were incorrect ones for me at the time. Second, a gentle touch confirmed that their presence was healing. It could have been as subtle as a touch on the hand, shoulder, or back or it can be as great as a hug, when I was feeling down or in real pain. A gentle look showed me their true interest in what I had to say without judgment. A gentle look could tell me so much and helped calm my fears. It reassured me of their reason for being here, as my support staff. Perhaps most important was that this gentleness expressed was in their voices. A gentle touch is not necessarily a soft voice. Some of my best workers are very loud people. However, a gentle voice does contain a zeal for life, that loud or soft can not be silenced. At its core, it was this zeal that gave me the strength to heal and improve my life for myself. All of these, the attitude, the touch, the look, and the voice, all come, in my opinion, from a gentle soul. A soul that itself is healthy and well balanced. I firmly believe that a soul that is not healthy can not help others to heal. A gentle soul does not need to put up walls or false fronts to protect itself. Instead it is real and says to the world, �This is who I am; warts and all.� This allowed me to know what kind of person I am dealing with and in that knowledge lay the safety that I needed to change and heal myself. |
|
| jorge | 12/4/2002 4:15:00 PM |
| The leyend of
the fire This is a leyend of a lot time ago when the animals king the earth,they were two groups, the rastrers and the big tigers, one day the tigers found the fire in the tree that was burning they maked a circle araund the tree and they dident move from there because they felt the heat, the rastres animals wanted that, one animal was bery brave and confronted the tigers he turned in ball, and he raise his tail to the fire and it start to burn the tail and he run into his friends cave they feed him with dry leaves and foreever they werent cold any more. |
|
| Craig Mitchell | 11/15/2002 2:25:00 PM |
| I am a 37
year old man with cerebral palsy who is interested in meeting women with
similar interests. I like to go to clubs to people watch and listen to
good rock music. I think it is romantic to go to the beach and talk
until the sun sets. I am a social drinker, and I do not smoke. I believe
all good relationships start with friendship and progress naturally to
be romantic if the chemistry is right. My other interests include
watching sports, travelling, playing video games, and going to
restaurants with friends. I like to go swimming. I am interested in
radios and have been a radio collector for many years. I use a
wheelchair to get around. I live in Burnaby. I have use of a van that
accomodates two or more wheelchairs. I can be reached at (604) 436-1376 |
|
| michelle | 11/1/2002 5:00:00 PM |
| hi I am back
and I just wanted to tell everyone that I had a very good time and the
scenery was even better coming back . |
|
| michelle | 9/30/2002 6:09:00 PM |
| hi everyone I
am in grandisland now as we speak and boy was it fun . I went on a bus
for 2 days and boy was it tiresome but I made it . seen some beautiful
country . I glad that I come hope the retreat went well and everyone
learned lots at edenvale this weekend . talk to u again |
|
| michelle obyrne | 8/31/2002 1:07:00 PM |
| hi everyone I
just wanted to tell you my emails have changed .
michelleobyrne2002@yahoo.ca and I also have another one
michelle_obyrne2002@msn.ca so anyone can get me here and I just wanted
to tell you I got my long distance back . and I so happy and I have a
funny experience I tried to get a hold of u bryce and you dad answered .
I just wanted to tell you guys that hahaha |
|
| stephie | 7/18/2002 11:58:00 AM |
| The Forest
Juniper lived by a small forest. The forest was always peaceful, quiet, and on somedays almost energised. Juniper beleived that the forest held a magic of some sort. Why? because whenever she entered it she always felt the spirit of the forest fllowing through her. If someone and reasently chopped down one of the forestes trees she entered and felt great sadness, pain, and nothingness. If the forest had reasently been rained apon she entered and felt joy, raleef,and accompaniment. Juniper soon became elder and was unable to walk into the forest. Yet every deed someone did for the forest she felt the joy.Every unnoble act someone did to the forest she felt the pain. Feeling all these feelings made her reolize that all the forest did was help her see the magic inside her and everyone. We are all part of magic. Equally as important as the forest. |
|
| Friendship. (a poem by jillian B.) | 6/22/2002 5:40:00 PM |
| Friendship is
like a ball of string,you and your friend are wound up so tight,nothing
could ever break the bond that you have with your friend,years go by,and
that ball of string starts to unravel,and soon,you and your friend are
disconnected,though the years,there has been everything from school,too
new friends,too homework,but that doesn't bother you,cos you have your
own circle of friends to keep you company,untill one day,in the 9th
grade,you ask your friend,to sign your yearbook,she writes 'it's great
seeing you after all these years',you read this comment in your
yearbook,and it just makes you feel good,that's real friendship..the
end. (just a poem i wrote,about my friend,natasha) |
|
| my story about my favorite girl in the whole wide world | 5/11/2002 2:07:00 PM |
|
anyway thats my story and i love you jill with all my heart and you will always be my favorite forever and ever |
|
| michelle obyrne | 5/2/2002 2:56:00 PM |
| hi everyone I
just wanted to tell you I think the website wonderful and my New Email
is michelleobyrne2001@yahoo.ca anyone can email me and I get back as
fast as I can |
|
| Bobbi-Lin Legere | 3/23/2002 3:32:00 PM |
| I am working
at Mountainside Cafe. I realy like my job. I love going to the Legion. I
take a Line Dance course. |
|
| Edwin Marzo | 2/19/2002 8:43:00 PM |
|
|
|
| http://web.archive.org/web/20030815194457/http://www.selfadvocatenet.com/stories/edmarz@eudoramail.com | |
| Tracy Martin | 2/4/2002 11:55:00 AM |
| I was born in
Abbotsford, BC on June 25, 1979. When I was born I had some difficultys
so the hospital sent me right over to Vancouver General Hospital and
there I stayed for sometime and my family stayed with me. I went to school at the age of five. My very first school was Hatzic. I did not like going at first because I was I was scared but all children are scard to go to school for their first time but this was different for me. I moved on and made it to grade one and I started to like school now but was still worryed to go some days. The school year is now over I get my report card and mom reads ot to me. She did not sound happy. The school says I need to repeat grade one all over again because the teacher thought I was a little slower then the other students. I thought I was going to grade two with all my other friends that were going but I had to stay behind. So with me staying behind made me a hole year behind in the rest of my hole schooling year and yes it did hurt to be a year behind. I was a year behind to graduate and all through school I had only a few friends and that was not much fun but it was better then no friends then at all. I graduated with my Dogwood certificate and you think the people that I went to school with would have any respect for me still now that we are out of school well they don't. They still see me as that slow girl all through school. Some days I wish I would wake up and be a new person where people would have respect for me. I wonder some days what I did to deserve such a rude replay from some people and I do not do anything to them to make them act this way to me. Now I go to community support and I have made some good friends and I think I will keep them. I enjoy going to the programs and see my worker Bev. We work on a few different things and there are somethings I know I need to learn like I know I need to learn how to stand up to people that disrespect me because I am different to them in their eyes. |
|
| Joyce Friesen | 2/4/2002 11:31:00 AM |
| People took
advantage of me when I went to school. Kids teased me. As a disabled
person it is hard to live on my own, to do shopping and buy things and
to do business like insurance, rent, bills, groceries and cooking. |
|
| Laura Swindlehurst | 2/4/2002 11:28:00 AM |
| HI my name is
Laura. I can talk and I know when how I feel sometimnes when peple don't
understand what I'm saying sometines I find that the people who don't
know me talk to me like I'm 2 years old. I really don't mind repeating
myself and if I reallt can't make myself undersdtood I'm always happy to
write down what I'm trying to say. |
|
| Jamie Owen | 2/4/2002 11:24:00 AM |
| HI my name is
Jamie Owen and I would like to share my story with you. I have had
problems because of my size and I would like to share some of these with
you. I have had kids up at the swimming pool call me names and whip me
with their towels. I told the lifeguard what had happened and he told
the kids to leave. I have had people shoot me with one of those
supersoakers as they drove by on First Avenue. I have learned to walk
away when this happens and not to get angry. I have some trouble going
out to places due to a lack of accessibility in restaurants, vehicles,
movie theatres, sporting events. There are a lot of places that I go to
that I cannot access properly so I leave. Things are slowly getting
better and I keep smiling. Thank you very much for listening. |
|
| Shannon Lebrun | 2/4/2002 11:19:00 AM |
| I think that
since I have been on community support that it has helped me a lot. I
have Bev as a worker and she has helped me so much. Bev has helped me
find a house, helped me look for things for my house, took me to do a
lot of things and I appreciate it so much. I think community support
helps everyone out in the long run. I don't think I would be where I am
right now without the help of community support. I can say they are
always there for you. You get a worker two times a week for five hours
and they take you shopping, help you cook, take you to appointmemnts. So
now like I said with Bev or any worker they are always there for you and
here are some examples: If I have to go to the doctor's or go to a
counselling appointment and I can only make it on a day that I am not
working with Bev then she will arrange to get another worker to work
with the client she has that day and she will take me to my appointment
and if she can't take me then she will make sure that I get there and
back safely. I like how they put you first and make sure you live on
your own and can't phone anyone then if you have workers number then you
can call them and they can help you if they live close or they will try
to make you feel better. With Bev, I call her and she lives too far away
to get me, but she always says it is O.K. and the landlords are
upstairs. I like how they are there for you no matter what. I am happy
that there is something like community support around and that they can
hekp you no matter what. I think the Mission Self Advocacy Group is about how to stand up for your rights and since I have gone to the meetintgs it has helped me to stand up for my rights. I feel like I can now go out in the community and speak to anyone about problems that I have and when people listen to me and they help me with the problem I feel like I have achieved something. |
|
| Marie Hart | 10/20/2001 8:24:00 AM |
| I live in
O'Leary PEI. I enjoy coming to the CACL Conference and meeting people
and seeing websites like SelfAdvocateNet so we can learn from each
other. I have a 7 year old son. His name is Gordon and he is in Grade 3.
I have good friends and support from the O'Leary local ACL. |
|
| Self Advocate | 10/18/2001 3:34:00 PM |
| i enjoy coing
to the mall and meet some friend to have coffee and talk. at home i like to use the computer and serfe the internet sometime i like to play video game |
|
| Bobbie Jean Maceachern | 10/18/2001 11:31:00 AM |
| i work for
the assiciation for the community living of queens county,i work at
sherwood drugmark,i'm a pretty good worker,and i work at the sister
saith marthus saint marys,i do the dishwashing,i'm a very busy person,i
work for brenda who's my boss.. |
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| peggy curry | 10/18/2001 11:05:00 AM |
| hi my name is
peggy,and i'd like to say the confrence in Moncton new brunswick is
nice,it's nice to meet people from all over the world.. |
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| Bonnie Johnston | 10/18/2001 10:56:00 AM |
| My name is
Bonnie and this is my first time at the CACL Conference and AGM. I am
here in Moncton, New Brunswick at the conference. I will be doing a
presentation tomorrow about my faith community in Cobourg, Ontario. Thank you for inviting me to the conference and I hope that my presentation will inspire others to take leadership training and develop a project of their own. Bonnie Johnston Ontario Association for Community Living Board Member |
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| Karl Harris | 10/14/2001 3:50:00 PM |
| Hi My Name
Karl Harris I Living Hear In Chilliwack Be Moved In Owen Sound Ontario
In Mouth In November That Sad I Leave My Post In Owen Sound, After 34
Year In Chilliwack, After Our House Is Sold. Don,t Let B.C. Die, Let In
Ontario Is Alive, Thank You Chilliwack I Serve 30 year In B.C. Love Karl Harris |
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| http://web.archive.org/web/20030815194457/http://www.selfadvocatenet.com/stories/KarlHarris@Dowco.com | |
| Jill. | 9/28/2001 1:46:00 PM |
| how i got
started with my 'Dear jill' column in the first place was listening to a
radio talk show,and this person inspired me into having my own adivce
column,her name is Delilah,and she's so caring,so loving,she listens to
your problems,just like me :)..Delilah also has a website,and she also
has an advice column to :),i don't know if any of you listen to her talk
show...but she's very kind hearted,she's a kindred spirit,and i love
her!...i had a good time in victoria :),it was fun...some of you may not
know this,but this website got an award for one of the top websites in
canada...wooohooooooo!!,we should give ourselves a hand for being
heard!..if it wasn't for going to the retreat last year,we wouldn't have
got an award! :)...gregg,bryce,cam and i went to victoria...i'm going to
the retreat in november...so,that's my story :) |
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| Ludo Van Pelt | 9/6/2001 10:05:00 PM |
Self-Advocacy,The Next Generation. I have been doing a special project to initiate a project, this self advocacy group is a youth group through the North Shore Association for the Mentally Handicapped where I work. It's mission has been to make plans for their future, to be ready to become leaders for tomorrows self adfvocates and to share of what our dreams will be. (Next stories will tell you of what we done) |
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| Tammy VanPelt | 9/6/2001 8:53:00 PM |
| Hi,my name is
Tammy VanPelt.I am 18 years old and I live with my mom and dad in
Burnaby B.C.Someday I hope to work with people who have disabiltes.I
have a friend named Jennifer Summers,she is my very bestfriend and we do
alot of things together.Jennifer is 19 and lives with her parents
too.Jennifer has a disabilite and yet she is very happy to always be
with her friends,she goes to Burnaby South where I graduated this year
from grade 12.We swim,go to Metrotown,go to movies or just hang out at
her house and listen to music.I also have a new kitten her name is Kiki. |
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| Shannon | 6/24/2001 7:37:00 PM |
| HI my name is
shannon Lebrun, I am 20 years old and I live in mission bc. I work with
kids in a preschool and I play soccer and hang with friends.I gey very
upset when people call me names and don't take me for who I am I want to
be treated as you would want to be treated. I love to go swimming, I
love soocer, The mall, and I have a worker name Bev Harms and I work
with her twice a week for five hours and she helps me cook clean and
helps me save my money she is reallu great to me and I want to thank her
for that.I have a boyfriend name shawn and we have been going out for
about a year and three months and he is the best boyfriend I could have.
That is what I wanted to write{There are you happy I wrote something
bryce{lol} |
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| sofia | 6/13/2001 8:33:00 PM |
| i enjoyed the
confrence @ executive towars in richmond & looking forward 2 the next
meeting @ whistler@ |
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| Mark Bain | 6/12/2001 2:21:00 PM |
| I am a toy
train collector for the Canadian Pacific Railway. I build railroad cars.
Someday I hope to go to the Kootneys in Revelstoke and Cranbrook. I have
always been a Canadian Pacific Railway fan. I would like to contact the
historical society that deals with CPR's history. Its a good hobby and
interesting. I like it. I also collect model railroad magizines. I have
been into the hobby for three years. I live in Terrace B.C. where it is all C.N. country. Real train engines motors are all built by General Electric and General Motors and these trains are over 4000 horse power. I am interested in hearing from other people that have the same interest. |
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| http://web.archive.org/web/20030815194457/http://www.selfadvocatenet.com/stories/choices@telus.net | |
| Silas Clayton | 6/12/2001 2:16:00 PM |
| I work at
Choices writing a newsletter. I use the computer and internet. I like
hanging out with my friends and family and hope that I can go to the
BCACL next year. I go visit my family in Aiyansh every fall and they
come to Terrace all the time. I went to Hawaii for two weeks and had a
good time. Have a nice day. |
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| http://web.archive.org/web/20030815194457/http://www.selfadvocatenet.com/stories/choicesterrace@telus.net | |
| Peter Nisyok | 6/12/2001 2:12:00 PM |
| I work every
day except for Thursday. I like hockey and go to games at night at the
arena on Sunday, Tuesday, Wednesday and Thursday every week. I am good
cook and like to cook and like to eat. In the summer I go and stay with
my family in Aiyansh. |
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| Marlene Sampare | 6/12/2001 2:08:00 PM |
| I live in
Terrace and my family lives in Skeena Crossing. Right now my mom is sick
and in the Hazelton Hospital. I like playing cards and going for French
Vanilla Capaccini. I work at an office and have my own business selling
baked goods. I like talking to Colleen when I am having a problem
because she helps. |
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| Kelly Tompkins | 6/11/2001 9:05:00 PM |
| my name is
kelvin shane Tompkins i've been an self advocate for a year now i was at the agm conferance in richmond b.c. i'm a mascot for ICO my hobbies are bowling, spending time with my wife and my friends. My best friend that i met at high school his name is darryl harand my other hobbies are reading, collecting old records from the fifties and the sixties. I love doing housework for my wife i was born in kelowna b.c. for 37 years i have a mom she is a very wonderful mother. I love her alot my dad is not here anymore he died in 1997 in March 7th. I love being a self advocate we do alot of neat things in the advocates. I'm a dj at the social drop in with dale and sid i love doing that kind of job but we don't paid for it. Living with my wife is great we do lot of things together like going shopping and going to malls. Mark is a great guy i really thing he is a great man for these meetings because he does alot of nice things for us. by kelly Tompkins |
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| Erik Bekker | 6/8/2001 5:56:00 PM |
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| Sydney Freeman | 6/8/2001 5:45:00 PM |
| I have a girl
friend named Tammy, we've been together for two years. We live downtown
Kelowna, behind the Kelowna Secondary School. We live in a condo. Tammy
and I are both involved in the B.C. Special Olympics. Tammy competes in
Bowling, she also competes in softball. I compete in Softball,
floorhockey, soccer, and powerlifting. I am presently working at Costco
as a bike detailer. A bike detailer fixes bikes, builds them and fine
tunes them. Tammy is in a cooking course at the Parkinson Recreation
Centre. Tammy and I are presently at the Annual General meeting of the
bcacl. I am on the self advocacy caucus of the bcacl. I represent self
advocate and i bring back information and take information to the
caucus, and back to Kelowna I take the information that i get at the
caucus. I have a father who lives in Kelowna and his name is Ian. My
step mother is named Joanne. My real mom lives in Victoria. I have a
step brother that lives in victoria as well as one of my grandmothers. |
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| Mindy Tompkins | 6/8/2001 5:37:00 PM |
| I am a very
well organized person, and i love to cook for Kelly (my husband). I also
love to shop. Kelly and I have two beautiful cats. Their names are
Cuddles and Amy. They are little brats, and Cuddles is lazy. I live in
Kelowna near the OUC or Okanagan University College. I work at the
Burger King near Orchard Park Plaza. I work 2 or 3 days a week from
around 11am. to 4pm. I've been there for two years next month. I earn
minimum wage at my job. I love my husband. We will have been married for
two years on July 17th. 2001. Kelly and I both have recieved alot of
support around getting married. Married life is wonderful. |
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| Langley Self Advocates | 6/8/2001 5:29:00 PM |
| We are trying
to get a group of people together to start a self advocate group. We
were almost at the point but then the bus strike happened and put a
wrench in all our plans. Now we are organizing and hopfully within the
next few weeks we will be having our first meeting. We have a group of
about 8 people who would like to get going on this group, our goal is to
do something on self assertiveness, but first we just want to get our
group going. My name is Deborah Grahame and I would be the advisor of
this group. It would be neet to get any support and assistance from
everyone out there that is dealing with issues of self advocacy and
advocacy. I'd love for people to contact me at my email at
damyga@hotmail.com my office phone number is 604-534-3477 please leave a
message on my voicemail if there is no answer. I will get back to
you.....Deborah. |
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| Patrick Piccin | 6/8/2001 3:24:00 PM |
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| Russell Wheat | 6/8/2001 9:02:00 AM |
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| Wendy Menzies | 6/8/2001 8:57:00 AM |
| HI everyone,
I am a good worker because I do recycling, Before that I did screening
of envelopes for Income Tax because it gets really busy during March.
This year was especially busy. I am doing pretty good with everything
else. I really like speaking out because I used to have probemns
speaking out until my friends, like Marci and Gerry and Patti and Ludo
helped me out. I really like being at conferences like this where I meet
lots of people and get to work with people like Gregg Schiller. |
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| JANIS SHARYK | 6/7/2001 4:55:00 PM |
| HI I AM FROM
TERRACE B.C. AND I WORK AT TERRACE ANTI POVERTY AND PNGI AND ALSO BUSY
EVER DAY AND THEATRE, BOWLING CURLING BIKING |
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| Sherry Macready | 6/7/2001 3:24:00 PM |
| I am a child
that cannot hear the words, I can not hear what the words are saying, I can not hear what the words have to offer, I can not hear the words to the song of the world, I can not hear the words of love, The words are not there for me. |
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| Joan Gatt | 6/7/2001 1:25:00 PM |
| hi I am a
self advocate from Powell River and I work at a shingle mill and the
peak .I live at a group home . |
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| http://web.archive.org/web/20030815194457/http://www.selfadvocatenet.com/ | |
| Janice OSTROM | 6/7/2001 10:44:00 AM |
|
with a room mate in an apartment in mission. I am treasurer of mission self Advocates groups Im with special Olympics. Im ALL SO going to summer games in july 2001 in prince george. my hobbies are watching videos listening to music I have a boy friend i like to socialize. with friends and all so like helping out and meeting new people and working on the Computer writing stories . |
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| http://web.archive.org/web/20030815194457/http://www.selfadvocatenet.com/ | |
| Michelle O'Byrne | 6/7/2001 10:19:00 AM |
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| http://web.archive.org/web/20030815194457/http://www.selfadvocatenet.com/ | |
| Albert Hutchins | 5/15/2001 12:10:00 PM |
| The tigers
are in danger. Self advicacy groups and People First need to do
something about it and save them. |
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| Tracy Martin | 5/15/2001 12:08:00 PM |
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| Dwight Grose | 5/15/2001 12:04:00 PM |
| I like
working at the farm at Edenvale. I'm all excited about the Retreat
that's coming up in September for the self advocates. I like going out
on the weekends. I buy my lunch and then go home and watch TV. I like to
travel. I am going to a travle agent to find out about going to
Switzwerland. I like what Gregg Schiller is doing with the group. He is
nice and patient. |
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| Jill Dunbar | 5/5/2001 11:45:00 AM |
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| Laura Swindlehurst | 5/2/2001 3:09:00 PM |
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| Henry Lenzman | 5/2/2001 10:40:00 AM |
| My name is
Henry Lenzman. I loke tyo beoutside. I am an outdoor guy. I like to rake
leaves, travel on city buses to the Library and I like to swim. |
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| Sheila Chouinard | 5/2/2001 10:38:00 AM |
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| Lisa Reddicopp | 5/2/2001 10:33:00 AM |
| I enjoy
shredding papers for my job. I like listening to my tapes. I enjoy going
for walks with my friends. I really like going out to the Savoy
Restaurant with my friend. I ride the buses and some of them are old and
also I have to hold on tight so I don't fall over. |
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| Dan | 5/2/2001 10:30:00 AM |
| Hello my name
is Dan. I live in Mission. I'm involved in swimming gams. I like to play
on the computer and watch TV. My disability is ceerebral palsy and
epilepsy. I go to a volunteer program across the road. I would like to
be treated with respect. |
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| Sandy | 5/2/2001 10:25:00 AM |
| My activities
I like is wrestling on TV. The wrestlers should not use language not
hurting other wrestlers. They should not use bad things on it. Vince
McMahon wants to divorce his wife, that is not right and I feel bad
about the wrestlers. Stone Cold wants to be friends with HHH and I don't
think that's not right. I work at the CourtHouse Cafe. |
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| Luke | 5/2/2001 10:20:00 AM |
| My name is
Luke. I like to play with my dog. I take him for walks in the park and
he swims in the lake. My family is important to me. I think we should
help people who are sick. I would like to make money by helping all
kinds of people. Maybe at the McDonald's or Safeway. I want a job. I
spend my free time with friends at the movies or playng baseball. Not
too long ago, I checked out the DOVE Program. We laugh a lot there and I
am learning to use a comnputer and do shredding. |
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| Marcy Baldwin | 5/2/2001 10:17:00 AM |
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| Austin | 5/2/2001 10:11:00 AM |
| I go to my
friend wedding is Joanne and Andrew. Brian having a wedding on Sunday
April 24. I go to Chilliwack for wedding in St. John Church and then go
to Harrison Hot Springs for supper in lobby than go home. |
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| Henry | 5/2/2001 10:07:00 AM |
| I like police
officers. |
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| Nena | 5/2/2001 10:07:00 AM |
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| Gerry Juzenas | 5/2/2001 9:50:00 AM |
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| Brian Mathot | 5/2/2001 9:40:00 AM |
| The image
that we make comes from who we are. If we work for 50% of what we get from the government we will present a better image. We make 50% by working (those of us who can). If we stand in a Pot of Gold that we find, how you spend it and give it away shows who you are and how you shine and what shines over you as a person. |
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| Kathy West | 5/2/2001 9:28:00 AM |
| My name is
Kathy West. My favourite things to do are watch Bob Barkers' The Price
Is Right and Richard Simmons and go for coffee. I have 5 jobs. I work at
Freeway Communications, S.P.C.A., Kids' Klub, Rogers Video, and Muggs
Coffee Shop. My favourite kind of coffee is peanut butter mocha. |
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| Connie Neumann | 5/2/2001 9:25:00 AM |
| My name is
Connie Neumann and I love swimmimg. I go swimmimg 2 -3 times a week and
I really enjoy it. The other activities I do during the week are: Body
Shop, Christiian Womans Club, MCC Office, and baking my famous chocolate
chip cookies for my little Bake Shop. I love my jobs and meeting new
people, and going shopping. I'm looking forward to meeting new people at
the Self Advocates' Day. |
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| Patti Van Pelt | 5/2/2001 9:20:00 AM |
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| Joanne Bunnin | 5/1/2001 6:56:00 PM |
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| Karen | 5/1/2001 6:49:00 PM |
| My name is
Karen and my boyfriend is George. We like to phone each other and visit
each other. We would like to go out for dinner at Chicken Chalet. We
like each other a lot. |
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| Herman | 5/1/2001 6:17:00 PM |
| My name is
Herman. I am 65 years old. I live in a group home. A different one now.
I like my home and my rommmates. I love football and baseball. |
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| Andrea | 5/1/2001 6:16:00 PM |
| My name is
Andrea and a long time ago I wanted to move from my group home. I was
not happy there so I talked to my Social Worker and told her how I felt.
I told her I needed to move somewhere else. So I moved in with my new
caregiver and I call her Mom. I have a rommmate named Marlene too. We
are good friends and roommates. Now we all moved together, from Salmon
Arm to Kamloops and then to Abbotsford. I like it here. |
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| Carol | 5/1/2001 5:55:00 PM |
| My name is
Carol and I like going to my Day Program and using the Computer. |
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| Jacob Funk | 5/1/2001 5:54:00 PM |
| My name is
Jake. I love to draw pictures. I live with my mom. When my mom is gone
someday, I would like to have my own apartment and live by myself. |
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| George Ricketts | 5/1/2001 5:52:00 PM |
| I love
Baseball. I go to Vancouver for games all the time. I like the Toronto
Blue Jays and Vancouver Canucks. I wish it was cheaper tickets because
they are costing too much. |
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| Carey | 5/1/2001 5:49:00 PM |
| My favourite
recreational activity is working-out. I work-out with Jenny every
Thursday afternoon. I enjoy working-out because it's fun and I like
being in shape. I also work at the Courthouse Cafe on Mondays and
Wednesdaya with all my friends. But I plan on getting a job, eventually!
I also plan on working-out for the rest of my life! Sometimes I workout,
by myself, but I don't seem to mind. My advice to anyone who wants to
start working-out is: Start off slow, and then work your way up! This is
my first story I have ever written. Thanks for letting me share my
story. |
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| Irene | 5/1/2001 5:38:00 PM |
| My parents
passed away in 1970 and 1984. My dad used to work for the CN Railroad
and my mother used to work in a hotel. I've lived on my own in my own
apartment since 1995. I get some help from support staff and my
neighbour. I go out a lot with my friends. I go to visit my brother in
Vancouver and my other brother in Hope for the holidays. I also talk to
my cousin on the phone. On Sundays I go bowling at the Chillibowl and I
go to Church in the morning. I like decorating my apartment with
pictures and wind chimes. And I like going for walks with my friends. |
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| James Stowell | 5/1/2001 4:48:00 PM |
| I pack
fridges and couches and lots of different things. I am a good worker at
MCC in Mission and have been there for a year and a half and I love
doing sports in the special area of a school field. I will be going to
Prince George for soccer in Special Olympics this summer. I live in
Mission for seven years and was living in the area of Vancouver Island
before that. |
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| J.P. Maher | 5/1/2001 4:44:00 PM |
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| Tim Dixon | 5/1/2001 4:22:00 PM |
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| Bryce Schaufelberger | 4/25/2001 10:43:00 PM |
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| Bruce Nierop | 4/25/2001 10:21:00 PM |
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| Alfred Fredrickson | 4/25/2001 9:56:00 PM |
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| Barb Goode | 4/25/2001 9:48:00 PM |
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| James Graham | 4/25/2001 9:47:00 PM |
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| Dwight Grose | 4/25/2001 9:46:00 PM |
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| Shawn Palmer | 4/25/2001 9:44:00 PM |
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| Robert Fruno | 4/25/2001 9:43:00 PM |
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I work at the Safeway in Sardis, BC on Tuesday, Thursday, Friday, and Saturday. I recycle bottles, collect cans, and put away shopping baskets and carts. I also help people carry their groceries and load them into the car. I have worked at Safeway for 11 years. I just received my 10 Year Award. I really enjoy my job and have met many nice people there. I get assistance from Support Workers and I do a lot of things on my own like grocery shopping, going to the Library, and visiting friends for coffee. I go swimming and bowling with Special Olympics. I go to my Church and sing in the Choir. I like watching videos and listening to music at home. I used to live with my foster parents Aunt Dee and Uncle Ray. Then in 1993 I moved into my own apartment in Vedder. My foster parent passed away years ago. But last year I was able to contact my real parents and my brother and sister. Now I call them on the phone sometimes. I really want to see them and spend time with them and their families. I really like living in my own apartmemt and I keep it clean. |
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| Jamie Alexander | 4/25/2001 9:42:00 PM |
| Good
afternoon my name is Jamie Alexander I live in Prince Rupert B.C.I have
been involved in the Prince Rupert Self Advocacy group scince 1996.I
will be starting a new job at Subway My hobbies include going on camping
trips and car washes bottle drives bake sales also doing things with my
friends even cleaning the trail on 5th east.I am going to be attending a
conference in Richmond B.C.in june I will be there the 7th 8th and 9th.I
am looking forward to seeihg you there Bye for now |
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